Support for Cauda Equina Syndrome

This page is divided into three sections:

1. Agencies specifically concerned with support for Cauda Equina sufferers.

2. Other agencies if you need counselling or emotional support.

3. Where to go for financial advice and support

1. SUPPORT FOR CAUDA EQUINA

Cauda Equina Syndrome Association

The CESA are a patient led non-profit organisation, striving to raise awareness of Cauda Equina Syndrome and support people living with the condition. It has a range of leading experts associated with the organisation who bring a wealth of knowledge and experience. The CESA aims to support people to continue to live positive, happy lives.

Membership is free to anyone living with Cauda Equina Syndrome

Email at info@ihavecaudaequina.com

Cauda Equina Uk

This organization operates an online support network. You can chat to people who understand CES and the affect it has on your life. Any member can create their own online group and invite people to join; these groups can be as private or public as you want them to be. – See more at:

www.caudaequinauk.com

Telephone: 0333 5 777 113

The Cauda Equina Syndrome Support Group

Is a grass-roots organization dedicated to providing information, support and increasing awareness of Cauda Equina Syndrome to individuals with this condition, their friends, family, the medical community, and the public at large.

COUNSELLING AND EMOTIONAL SUPPORT:

British Association for Counselling

Telephone number 0870 443 5252.

Website:/ www.bacp.co.uk

Dedicated to the promotion of counselling and maintenance of standards and training and practice, providing information on training and lists of local counsellors on receipt of a S.A.E.

The Samaritans

HELPLINE:

• 116 123 (UK)
• 116 123 (ROI)

They are there round the clock, 24 hours a day, 365 days a year.  This number is FREE to call. You don’t have to be suicidal to call them

OR EMAIL: jo@samaritans.org

Website: www.samaritans.org

FOR FINANCIAL ADVICE AND SUPPORT:

The Money Advice Service

For advice on benefits entitlement and financial matters, we recommend you seek further information via your local authority website for local support services or at The Money Advice Service:

https://www.moneyhelper.org.uk/en/benefits/problems-with-benefits/where-to-get-help-and-advice-about-benefits

• Age UK benefits advice for older people

Age UK is for those over State Pension age and living in the area covered by the local branch. Some local branches of Age UK offer a free, confidential benefits advice service. Practical assistance to make sure you’re getting all the benefits to which you are entitled. They can provide advice by telephone, face-to-face and home visits and help with completing forms.

Telephone the Age UK Helpline: 0800 169 6565 (8am-7pm, 365 days a year)

Website:  Age UK website

Gingerbread Single Parent Helpline

Gingerbread provides advice and practical support for single parents, including advice on benefits and tax credits.

You can call free on 0808 802 0925 (Monday: 10am to 6pm, Tuesday, Thursday, Friday: 10am to 4pm, Wednesday: 10am-1pm and 5pm-7pm)

Debt advice

If you’re worried about keeping up with debt repayments there is lots of free, confidential help and advice available. Find out more by following the link below:

Where to go to get free debt advice

Housing advice

If you have rent or mortgage arrears or you’re worried about losing your home, Shelter offers confidential advice on a range of housing issues.

• Visit the Shelter England website
• Visit the Shelter Scotland website
• Visit the Shelter Cymru website
• Visit the Shelter Northern Ireland website